Velo-cardio-facial syndrome (VCFS) is the most common multiple anomaly disorder in humans that is caused by a microdeletion of DNA. It is known by a number of other names, including DiGeorge syndrome, conotruncal anomalies face syndrome, Sedlačková syndrome, and more recently, 22q11.2 deletion syndrome. Nearly 200 distinct anomalies and disorders are associated with VCFS. Although 1 in every 2000 people in the U.S. has VCFS, this is still considered to be a rare disease. Because so many problems can occur in people with VCFS, it is difficult to have all of the specialists needed for the diagnosis and management of the syndrome and its symptoms together in one location.

The information needed to determine management of VCFS may not be available to everyone, and most information available to the public on the internet or in publications is general in nature and may not apply to everyone affected by the syndrome. The Virtual Center for Velo-Cardio-Facial Syndrome may be the solution to the need for more specific and useful information.

For more information, register to get started. Find out more information about making a donation.

email: info@vcfscenter.com
telephone: 1-315-559-4685
fax: 1-480-247-4290
Mailing address:
8138 Solomon Seal Lane
Manlius, NY 13104

The formation of The Virtual Center for Velo-Cardio-Facial Syndrome, Inc. was made possible by financial support from two generous donors, The Aquarius Cup and Voss Signs, LLC. We would like to express our gratitude to Christian and Meegan Ringvold and to all of the sponsors and Friends of the Aquarius Cup, who made the launch of our new service possible and to Jim and Debbie Menter of Voss Signs, L.L.C. whose generous donation allowed us to develop and maintain our service during our initial months of operation.

Visit Voss Signs at: http://www.vosssigns.com