The Virtual Center for Velo-Cardio-Facial Syndrome

The Virtual Center for Velo-Cardio-Facial Syndrome


Our Services
The Virtual Center for Velo-Cardio-Facial Syndrome, Inc. is an open-access 501(c)3, internet-based charitable organization that provides personalized information to people whose lives have been touched by VCFS and who are seeking applicable research and clinical expertise regarding the management of the syndrome. There is no charge for this service, which is funded by voluntary donations.

The Center’s staff includes experts with extensive experience with VCFS who are available individually or in a conference format with registrants to the web site and their local physicians, speech-language pathologists, dentists, educators, etc. The entire staff is comprised of people who have seen, collectively, thousands of children and adults with VCFS. We have multiple options for communicating with you. Our preferred method is by video conference using your computer and a webcam. For conversations between two people, we can use Skype® or Face Time® (Mac, iPhone 4, iPod Touch, or iPad users only), or for conference calls involving up to six people, ooVoo®. If you do not have high speed (broadband) internet access or a webcam, we can use the telephone or email.

This web site has a number of useful files you may wish to download. On this page you will find a list of all of the anomalies and their relative frequency that have been reported or observed in VCFS. On the Downloads page you will find files with recommendations and site-related instructions. On the Journal page, you may download growth charts specific to VCFS. We hope you will find these features to be useful.

To Use Our Services:

Register on the web site We will keep your personal information confidential and not share it with anyone outside of our organization.

Carefully read and sign the acknowledgement form. Carefully read and sign our acknowledgement form. This form signifies your understanding that we are not considered to be responsible for your health care, but that we are simply functioning as providers of information that may prove useful in terms of dealing with your needs and questions. After downloading this form, sign it, and return it to us by scanning it and sending it back by email. If you cannot scan and email the form, you may fax or mail it.

Complete the appropriate 'history' form. If you are contacting us about velo-cardio-facial syndrome, download the VCFS history form (the file downloads as a Word document), fill it out as instructed and return it to us. If you are not contacting us about VCFS, then download the craniofacial history form, fill that out and return it to us. This will allow us to provide you with information most relevant to your situation..


Drs. Golding-Kushner, Ysunza, and Shprintzen speaking at a meeting in Rome, Italy.