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OUR TEAM
 

The Center’s staff includes experts with extensive experience with VCFS who are available individually or in a conference format with registrants to the web site and their local physicians, speech-language pathologists, dentists, educators, etc. The entire staff is comprised of people who have seen, collectively, thousands of children and adults with VCFS. We have multiple options for communicating with you.

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What We Do
The Center’s staff includes experts with extensive experience with VCFS who are available individually or in a conference format with registrants to the web site and their local physicians, speech-language pathologists, dentists, educators, etc. The entire staff is comprised of people who have seen, collectively, thousands of children and adults with VCFS. We have multiple options for communicating with you. Our preferred method is by video conference using Zoom.
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SERVICES
TEAM
The Virtual Center for Velo-Cardio-Facial Syndrome, Inc. is an open-access 501(c)3, internet-based charitable organization that provides personalized information to people whose lives have been touched by VCFS and who are seeking applicable research and clinical expertise regarding the management of the syndrome. There is no charge for this service, which is funded by voluntary donations.
Video from meeting hosted at Burlo Garofolo Children’s Hospital in Trieste, Italy
ARTICLES AND NEWS


 

 

 

 

 

 

 

 

 

 

View the 5-minute video “The Smallest Good Deed,” the story of Anna whose sister has VCFS and her wisdom and devotion to her younger sibling. If you would like a copy of the video, either as a digital file or a DVD, contact us at info@vcfscenter.org, we will provide one to you at no cost.
 

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       Nicholas J. Bennett, MBBChir, Ph.D.

       Leonard B. Weiner, M.D.

       Jack J. Blessing, M.D., Ph.D.

            

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      Robert J. Shprintzen, Ph.D.
     Anne Marie Higgins, R.N., F.N.P., M.A.

            

         

NEWS
Need more details? Contact us

We are here to assist. Contact us by phone, email or via our social media channels.

CONTACT

The Virtual Center for Velo-Cardio-Facial Syndrome, Inc. is an open-access 501(c)3, internet-based charitable organization that provides personalized information to people whose lives have been touched by VCFS and who are seeking applicable research and clinical expertise regarding the management of the syndrome. There is no charge for this service, which is funded by voluntary donations.

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