OUR TEAM
Our team of experts have extensive experience in the evaluation, study, and treatment of people with VCFS. Collectively, they have published hundreds of peer reviewed articles in the biomedical and behavioral literature and have also lectured worldwide to audiences in hospitals, universities, and parent support groups on every inhabited continent in more than 40 countries. All of these experts have been involved in interdisciplinary care and were hand selected for their knowledge of VCFS and not for their institutional affiliations. Our Team members have worked in locations around the world and the Center has no walls, bricks or mortar, or institutional affiliation. Our Center is a Center without walls yet our staff is as cohesive and collaborative as any program anywhere in the world, and the staff chose purely based on expertise.​​​​​​​
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What We Do
The Center’s staff includes experts with extensive experience with VCFS who are available individually or in a conference format with registrants to the web site and their local physicians, speech-language pathologists, dentists, educators, etc. The entire staff is comprised of people who have seen, collectively, thousands of children and adults with VCFS. We have multiple options for communicating with you. Our preferred method is by video conference using Zoom.
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The Virtual Center for Velo-Cardio-Facial Syndrome, Inc. is an open-access 501(c)3, internet-based charitable organization that provides personalized information to people whose lives have been touched by VCFS and who are seeking applicable research and clinical expertise regarding the management of the syndrome. There is no charge for this service, which is funded by voluntary donations.
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Video from meeting hosted at Burlo Garofolo Children’s Hospital in Trieste, Italy
ARTICLES AND NEWS
View the 5-minute video “The Smallest Good Deed,” the story of Anna whose sister has VCFS and her wisdom and devotion to her younger sibling. If you would like a copy of the video, either as a digital file or a DVD, contact us at info@vcfscenter.org, we will provide one to you at no cost.
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Doctors said the boy was suffering from teenage psychosis. What he really had was a rare genetic condition. (Washington Post)
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The 40th Anniversary of the Discovery of Velo-Cardio-Facial Syndrome
Nicholas J. Bennett, MBBChir, Ph.D.
Leonard B. Weiner, M.D.
Jack J. Blessing, M.D., Ph.D.
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Robert J. Shprintzen, Ph.D.
Anne Marie Higgins, R.N., F.N.P., M.A.
The Virtual Center for Velo-Cardio-Facial Syndrome, Inc. is an open-access 501(c)3, internet-based charitable organization that provides personalized information to people whose lives have been touched by VCFS and who are seeking applicable research and clinical expertise regarding the management of the syndrome. There is no charge for this service, which is funded by voluntary donations.